Tiger27 wrote:I don’t understand why they have a such a lack of services. I’ve watched some, but not all, of her videos explaining their journey with Noah and I just can’t wrap my mind around why they haven’t been more practice getting him help. Someone correct me if I’m wrong... It seems like they weren’t doing much of anything for him pre YouTube. Now that they’re in the public eye, they can’t keep slacking. It feels like they’ve missed out on years of valuable services for him because they were too lazy to seek them out. What’s going to be any different in Boston (except a higher cost of living??)? They are still going to have to put in the work to find him services. I just don’t get it.
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I agree. Anyone know why they're choosing Boston? She says it's because the services are great, but I would imagine there are other places with great services, too (please correct me if I'm wrong). I don't think they have family or friends in Boston. It seems like a premature move. They seem to be putting a lot of stock into this Boston move- therapies for the boys, placing their kids back into public schools (it wasn't even a few months ago when she said she would never place her kids back in public school), etc, as if it will be this magical fix for everything.
It also bothers me how much she goes back and forth on what services are needed for the kids, further delaying appointments and therapies. For months she was talking about getting Lex an autism evaluation and how frustrating it was to need to wait months before the appointment, but she delayed getting on the wait list for a long time, and now says she does not think Lex has autism and doesn't need an evaluation, because if he does have autism, she thinks he's high functioning. Um, those with high functioning autism can benefit from services, too. Considering how much trouble they've had with getting a diagnosis for Noah (which is an entirely different story), I would have thought she'd want to go through with the evaluation so they can get started on services early. Now if in a few months they start seeing signs in Lex, they'll have to repeat the wait time and process over again in order to get a formal diagnosis, which is needed for services. And don't get me started on how she started the formal evaluation process with Noah, but isn't going to finish because she's worried the doctor won't give the diagnosis she was expecting.
It's very clear she loves her kids and wants only what's best for them. It just seems like she gets scared off with long wait times and doesn't commit, like it's now or never. And then when there is a problem or a crisis, she doesn't know how to navigate it and gets frustrated. I hope she starts contacting places in Boston before they move so things are set up for the boys when they get there, and they don't have to wait for months to begin services (again). But with her track record, I don't know if she will. There will also be a learning curve with navigating a new healthcare system.
Lastly, just an off topic comment: Does she know what "minimalist" means? I'm pretty sure she thinks it means not paying full price for things and buying things used. It's funny when she describes her family as minimalists and then shows the giant clothing hauls and christmas hauls. Of course, there's nothing wrong with this (I'm super guilty of having too many things), I just find it amusing.
