Tannerites/YAWI: Failing our kids as they fail homeschool | Part 2

[Kattiness Everdeen]

I can't decide if these kids have it better or worse when their parents ditch them for extended periods of time. Allie has been left the adult in charge of the house several times, but now that S&J are back and trying to make parenting videos, Allie is back to getting grounded and having privileges taken away. Yet, at the same time, she is reprimanded for not paying for everything herself now that she is 18. They even talked about how they can just take money out of her account any time they think it is appropriate. Either let the girl be an adult, or let her be a child until she is done with high school and can get a job!

Has Allie been left at home on previous family vacations because she couldn't afford the passes? They said they paid for her Disney passes "THIS time" but she was responsible from now on. Did they do this to Branson too? He was required to put all his money into a mission, during which he could earn an income for 2 yrs, right? We still saw him on family vacations. Is this how they try and force girls to get married at 18, prevent them from enjoying adult freedoms while piling on adult responsibilities so they will say yes to the first guy that offers to rescue them?

[Kattiness Everdeen]

Sorry for all the posts, but I want a record of this when the tell-all books and YT documentaries start to come out. It is not normal for kids to regularly suffer joint dislocations. It is either a sign of abuse, or a sign of a serious medical disorder. We have a genetic connective tissue disorder in my family (dislocations is a hallmark), but it didn't stop social workers from grilling my parents about potential abuse when my sister was brought to the hospital with a dislocated shoulder. My particular mutation also causes weakened arterial walls, which formed an aortic aneurysm in my 20's. It would have been fatal without detection and surgical correction. It is also extremely rare, but serious enough that my entire family was also advised to immediately seek echocardiograms from a cardiologist. They need to sort out Allie's health issues.

Either they know it isn't a medical issue, or they are ignorant to the implications. If Allie really is falling down the stairs, dislocating from hand holding, and getting injuries from vacuuming, she should at least be evaluated for EDS/Marfans to rule it out. Her grandpa is supposed to be a doctor, he would know that even non-athletic kids shouldn't regularly have their joints fail when a parent merely holds their hand. Or maybe he does know that, and that is why he taught her parents how to pop them back themselves without getting mandated reporters involved. Either way Allie is suffering, but if it is due to a connective tissue disorder, she needs to have her heart screened ASAP, along with all her close genetic relatives. There are usually no heart related symptoms until the aneurysm bursts. It was only weeks between getting my diagnosis and open heart surgery.

[Kattiness Everdeen]

Has Allie always gotten UTIs/bladder infections? Her and Johnny talked about it like it was a routine part of her monthly cycle....Johnny is so creepy.

Johnny implied Branson was responsible for their DIsney trip. Did he arrange it for free, or did they make him pay for the family or something? He already bought all those expensive the Christmas presents. Is his channel that successful? And who was that middle aged woman following them around?

[Lolislol26]

Has Allie always gotten UTIs/bladder infections? Her and Johnny talked about it like it was a routine part of her monthly cycle....Johnny is so creepy.

Johnny implied Branson was responsible for their DIsney trip. Did he arrange it for free, or did they make him pay for the family or something? He already bought all those expensive the Christmas presents. Is his channel that successful? And who was that middle aged woman following them around?

Maybe they hired a nanny for Canyon!


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[Lolislol26]

Are they still going to church or is Johnny holding service at their dinning room table? Sarah is ridiculously immature to have 7 children. You could tell Daniell was uncomfortable when Sarah was praising her for getting herself up and ready on time.


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[Lolislol26]

Branson is proposing to his girlfriend.
Daniell looked uncomfortable during his ring reveal/ announcement. Allie looked annoyed. A couple months ago Allie told Branson she’d get married before him.


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[ThisIsMeCeej]

Branson is proposing to his girlfriend.
Daniell looked uncomfortable during his ring reveal/ announcement. Allie looked annoyed. A couple months ago Allie told Branson she’d get married before him.


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Let's see... they will get married in spring, and announce their first baby early summer... why anyone would wanna marry into that family, is beyond me... hopefully Branson isn't as much of an arrogant jerk as his father is. I wonder where they will live though, will Branson move closer to her family, or will she move closer to his family?

[Lolislol26]

Branson is proposing to his girlfriend.
Daniell looked uncomfortable during his ring reveal/ announcement. Allie looked annoyed. A couple months ago Allie told Branson she’d get married before him.


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Let's see... they will get married in spring, and announce their first baby early summer... why anyone would wanna marry into that family, is beyond me... hopefully Branson isn't as much of an arrogant jerk as his father is. I wonder where they will live though, will Branson move closer to her family, or will she move closer to his family?

Branson doesn’t come off as arrogant as Johnny but that may only be because he’s so young. Immature for sure, though. Honestly, I just hope they don’t start a family vlogging channel.


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[GGF1987]

Branson acts like he is 12(of course his parents never matured past that point, so you can't expect him to), he's never lived on his own or paid his own bills, he has no job or any aspirations, he's been with this girl for like 5 seconds, and he's going to ask her to marry him. They don't even seem that into each other and I truly believe he is just doing this to make his parents happy. Is he going to marry her and move her into his parents house? I just can't see this marriage working out.

[sweetlace]

Did Branson propose already and her say yes?????


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[ThisIsMeCeej]

Did Branson propose already and her say yes?????


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The vlogs are behind, so probably to both... gotta get started on that baby making soon! They are way behind, they should have a baby and one on the way by now...

[Kattiness Everdeen]

Did Branson propose already and her say yes?????


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The vlogs are behind, so probably to both... gotta get started on that baby making soon! They are way behind, they should have a baby and one on the way by now...

S&J have been pushing for a marriage/baby since he got back from his mission. Remember when they told him not to come home until he found a girl to date, then asked if she was baby worthy after meeting her once?

I just hope they are actually into each other. She seems really shy and overwhelmed by his family....who could blame her.

Branson seems to be Mr. Moneybags all of a sudden, so I am wondering if they finally released his earnings to him or something now that he is "on the right path". Maybe the old house will be gifted as part of the good Mormon boy compliance package. Or maybe the house is being withheld until he levels up and impregnates her per his parents wishes....

[Kattiness Everdeen]

Yikes. I watched todays vlog. Az called Johnny and Canyon in to show them what he is learning in school. It is a recording saying that is is mean/cruel to tease someone until they cry. Johnny asks Canyon if that reminds him of anyone and he gets a big smile on his face, and says "me and you". Poor Az, at least school is teaching him that the behavior is wrong. Canyon probably wouldn't enjoy torturing Az so much if he didn't see his father doing it too.

Also, who sits alone in a cold hot tub with their father late into the night "talking about boys"!? Is that how Johnny convinced Branson to get married? They are so weird.

[Lolislol26]

Did Branson propose already and her say yes?????


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The vlogs are behind, so probably to both... gotta get started on that baby making soon! They are way behind, they should have a baby and one on the way by now...

S&J have been pushing for a marriage/baby since he got back from his mission. Remember when they told him not to come home until he found a girl to date, then asked if she was baby worthy after meeting her once?

I just hope they are actually into each other. She seems really shy and overwhelmed by his family....who could blame her.

Branson seems to be Mr. Moneybags all of a sudden, so I am wondering if they finally released his earnings to him or something now that he is "on the right path". Maybe the old house will be gifted as part of the good Mormon boy compliance package. Or maybe the house is being withheld until he levels up and impregnates her per his parents wishes....

I was thinking that maybe they’re saving the house for Branson or Allie- whoever marries first. I know Allie was convinced she’d get married and have a baby before Branson. Hopefully Branson is still saving and putting money away, not blowing it all now.

[MervelllaB]

Sorry for all the posts, but I want a record of this when the tell-all books and YT documentaries start to come out. It is not normal for kids to regularly suffer joint dislocations. It is either a sign of abuse, or a sign of a serious medical disorder. We have a genetic connective tissue disorder in my family (dislocations is a hallmark), but it didn't stop social workers from grilling my parents about potential abuse when my sister was brought to the hospital with a dislocated shoulder. My particular mutation also causes weakened arterial walls, which formed an aortic aneurysm in my 20's. It would have been fatal without detection and surgical correction. It is also extremely rare, but serious enough that my entire family was also advised to immediately seek echocardiograms from a cardiologist. They need to sort out Allie's health issues.

Either they know it isn't a medical issue, or they are ignorant to the implications. If Allie really is falling down the stairs, dislocating from hand holding, and getting injuries from vacuuming, she should at least be evaluated for EDS/Marfans to rule it out. Her grandpa is supposed to be a doctor, he would know that even non-athletic kids shouldn't regularly have their joints fail when a parent merely holds their hand. Or maybe he does know that, and that is why he taught her parents how to pop them back themselves without getting mandated reporters involved. Either way Allie is suffering, but if it is due to a connective tissue disorder, she needs to have her heart screened ASAP, along with all her close genetic relatives. There are usually no heart related symptoms until the aneurysm bursts. It was only weeks between getting my diagnosis and open heart surgery.

Sorry for replying to an old post but I haven’t been on the board for a while. I too have a genetic connective tissue disorder - EDS type III. Last year I suffered a subarachnoid haemorrhage due to a ruptured cerebral aneurysm and was very lucky to survive. I now have to go back to clinical genetics to check if the type of EDS I have needs to be re-classified to vascular.
I wish these vlog families would learn that they need to take the physical and mental health of their children more seriously!


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[Kattiness Everdeen]

Sorry for replying to an old post but I haven’t been on the board for a while. I too have a genetic connective tissue disorder - EDS type III. Last year I suffered a subarachnoid haemorrhage due to a ruptured cerebral aneurysm and was very lucky to survive. I now have to go back to clinical genetics to check if the type of EDS I have needs to be re-classified to vascular.
I wish these vlog families would learn that they need to take the physical and mental health of their children more seriously!


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[/quote]

I hid my massive OT reply under "Spoiler" to limit nuisance to others...

Wow! Would you be willing to keep me updated on your journey? I am "officially" EDS III/hEDS Type as well. I am guessing it has been a while since your diagnosis based on terminology? They ran an expanded genetic panel when I had my aortic aneurysm, but I didn't have any mutations on the known genes associated with vEDS. I did have a novel mutation on COL12A1, which is the gene normally associated with Myofascial EDS (mEDS). It is so poorly researched (only 9? people diagnosed in the world) they basically said "we don't know what the results mean" and sent me on my way.

6 Months after the aortic aneurysm, the ER found a small cerebral aneurysm on my carotid artery. Nobody can tell me if it is due to EDS and at risk of growing uncontrollably, or just normal human variation that would never have been found except for the insane amount of scans needed to monitor all the other EDS damage. Aneurysms are supposed to be extremely rare in "hEDS". Especially cerebral aneurysms. Having two myself, and running into another hEDS person with one on a random nearly-abandoned gossip thread seems statistically impossible, if that were true. I assume your geneticist also thinks it is rare, or they wouldn't test you for vEDS. Unfortunately I know how expensive that is (assuming you are in the US).

It is starting to feel like researchers may have accidentally lumped vEDS-like patients into the hEDS category because they haven't identified the mutation yet. Or perhaps my unclassified COL12A1 mutation is actually responsible for the faulty arteries and is a new form of EDS? I don't present the same way as any other hEDS patient I have ever come across. My other theory is that the combination of hEDS & Lyme Disease just magnified the rare outcomes/severity of both. That was another fun discovery on my decade long path to EDS diagnosis. Advanced untreated neuro-Lyme has a shocking amount of symptom overlap with EDS, including documented cases of aortic/cerebral aneurysm. I wish I knew how to get my aortic tissue from the research bank, to the correct doctor to have it tested for the bacterium that causes Lyme. Have you ever been tested for/had Lyme disease?

Apologies for being so nosey, but I kind of resigned myself "to just let nature take its course" with the brain aneurysm. Until now. You are making me think I might not be crazy and there should be a better answer than "we don't know why this is happening to you, and we don't care". Feel free to tell me to mind my business...or let me know if you want to swap emails....but if you have a mutation on COL12A1 or have Lyme, I think it is in the best interest of science & humanity for us to let someone know!

[ThisIsMeCeej]

Sorry for replying to an old post but I haven’t been on the board for a while. I too have a genetic connective tissue disorder - EDS type III. Last year I suffered a subarachnoid haemorrhage due to a ruptured cerebral aneurysm and was very lucky to survive. I now have to go back to clinical genetics to check if the type of EDS I have needs to be re-classified to vascular.
I wish these vlog families would learn that they need to take the physical and mental health of their children more seriously!


Sent from my iPhone using Tapatalk

I hid my massive OT reply under "Spoiler" to limit nuisance to others...

Wow! Would you be willing to keep me updated on your journey? I am "officially" EDS III/hEDS Type as well. I am guessing it has been a while since your diagnosis based on terminology? They ran an expanded genetic panel when I had my aortic aneurysm, but I didn't have any mutations on the known genes associated with vEDS. I did have a novel mutation on COL12A1, which is the gene normally associated with Myofascial EDS (mEDS). It is so poorly researched (only 9? people diagnosed in the world) they basically said "we don't know what the results mean" and sent me on my way.

6 Months after the aortic aneurysm, the ER found a small cerebral aneurysm on my carotid artery. Nobody can tell me if it is due to EDS and at risk of growing uncontrollably, or just normal human variation that would never have been found except for the insane amount of scans needed to monitor all the other EDS damage. Aneurysms are supposed to be extremely rare in "hEDS". Especially cerebral aneurysms. Having two myself, and running into another hEDS person with one on a random nearly-abandoned gossip thread seems statistically impossible, if that were true. I assume your geneticist also thinks it is rare, or they wouldn't test you for vEDS. Unfortunately I know how expensive that is (assuming you are in the US).

It is starting to feel like researchers may have accidentally lumped vEDS-like patients into the hEDS category because they haven't identified the mutation yet. Or perhaps my unclassified COL12A1 mutation is actually responsible for the faulty arteries and is a new form of EDS? I don't present the same way as any other hEDS patient I have ever come across. My other theory is that the combination of hEDS & Lyme Disease just magnified the rare outcomes/severity of both. That was another fun discovery on my decade long path to EDS diagnosis. Advanced untreated neuro-Lyme has a shocking amount of symptom overlap with EDS, including documented cases of aortic/cerebral aneurysm. I wish I knew how to get my aortic tissue from the research bank, to the correct doctor to have it tested for the bacterium that causes Lyme. Have you ever been tested for/had Lyme disease?

Apologies for being so nosey, but I kind of resigned myself "to just let nature take its course" with the brain aneurysm. Until now. You are making me think I might not be crazy and there should be a better answer than "we don't know why this is happening to you, and we don't care". Feel free to tell me to mind my business...or let me know if you want to swap emails....but if you have a mutation on COL12A1 or have Lyme, I think it is in the best interest of science & humanity for us to let someone know!

[/quote]

Same as above reason for spoiler

Wow, it's funny to run in to so many people who have EDS on a forum like this. I am going to a geneticist in October (or as soon as they get a cancelation. The doctor only see's new patients every first Monday of the month.) to find out if I have EDS. It's a sister diagnosis to the main condition I have, and I have had a lot of the symptoms forever, and finally got referred to a geneticist to find out if I do or don't have it. As well as I am seeing a cardiologist to see if I do or don't have POTS, which is another sister diagnosis, that I have been having symptoms of for a long while.

[Kattiness Everdeen]

Sorry for replying to an old post but I haven’t been on the board for a while. I too have a genetic connective tissue disorder - EDS type III. Last year I suffered a subarachnoid haemorrhage due to a ruptured cerebral aneurysm and was very lucky to survive. I now have to go back to clinical genetics to check if the type of EDS I have needs to be re-classified to vascular.
I wish these vlog families would learn that they need to take the physical and mental health of their children more seriously!


Sent from my iPhone using Tapatalk

I hid my massive OT reply under "Spoiler" to limit nuisance to others...

Wow! Would you be willing to keep me updated on your journey? I am "officially" EDS III/hEDS Type as well. I am guessing it has been a while since your diagnosis based on terminology? They ran an expanded genetic panel when I had my aortic aneurysm, but I didn't have any mutations on the known genes associated with vEDS. I did have a novel mutation on COL12A1, which is the gene normally associated with Myofascial EDS (mEDS). It is so poorly researched (only 9? people diagnosed in the world) they basically said "we don't know what the results mean" and sent me on my way.

6 Months after the aortic aneurysm, the ER found a small cerebral aneurysm on my carotid artery. Nobody can tell me if it is due to EDS and at risk of growing uncontrollably, or just normal human variation that would never have been found except for the insane amount of scans needed to monitor all the other EDS damage. Aneurysms are supposed to be extremely rare in "hEDS". Especially cerebral aneurysms. Having two myself, and running into another hEDS person with one on a random nearly-abandoned gossip thread seems statistically impossible, if that were true. I assume your geneticist also thinks it is rare, or they wouldn't test you for vEDS. Unfortunately I know how expensive that is (assuming you are in the US).

It is starting to feel like researchers may have accidentally lumped vEDS-like patients into the hEDS category because they haven't identified the mutation yet. Or perhaps my unclassified COL12A1 mutation is actually responsible for the faulty arteries and is a new form of EDS? I don't present the same way as any other hEDS patient I have ever come across. My other theory is that the combination of hEDS & Lyme Disease just magnified the rare outcomes/severity of both. That was another fun discovery on my decade long path to EDS diagnosis. Advanced untreated neuro-Lyme has a shocking amount of symptom overlap with EDS, including documented cases of aortic/cerebral aneurysm. I wish I knew how to get my aortic tissue from the research bank, to the correct doctor to have it tested for the bacterium that causes Lyme. Have you ever been tested for/had Lyme disease?

Apologies for being so nosey, but I kind of resigned myself "to just let nature take its course" with the brain aneurysm. Until now. You are making me think I might not be crazy and there should be a better answer than "we don't know why this is happening to you, and we don't care". Feel free to tell me to mind my business...or let me know if you want to swap emails....but if you have a mutation on COL12A1 or have Lyme, I think it is in the best interest of science & humanity for us to let someone know!

Same as above reason for spoiler

Wow, it's funny to run in to so many people who have EDS on a forum like this. I am going to a geneticist in October (or as soon as they get a cancelation. The doctor only see's new patients every first Monday of the month.) to find out if I have EDS. It's a sister diagnosis to the main condition I have, and I have had a lot of the symptoms forever, and finally got referred to a geneticist to find out if I do or don't have it. As well as I am seeing a cardiologist to see if I do or don't have POTS, which is another sister diagnosis, that I have been having symptoms of for a long while.

[/quote]

It is a freaking small world! I just remembered Direct Messaging is a thing, so I am going to try you guys there.....sorry to the 2-3 people in this forum that don't have EDS

[ThisIsMeCeej]

Going back to topic On IG I saw that Daniell had her wisdom teeth removed... so, I guess we'll be seeing a vlog about all the funny things she said and did when she had them removed. I'm just wondering, is it a typical thing to give everyone laughing gas, when they have their wisdom teeth removed? When I had mine out, I couldn't have it, because of my allergies... so, all I got was the numbing shots... and I was shaking so bad, the nurse had to lay on top of me to get me to sit still, I was so nervous. I didn't feel a thing, I didn't even realize the dentist had even removed them... so, other than for nerves, why give laughing gas? Just wondering if anyone knows?

Also, I wonder when Allie is going to hear back from Disney? From how it sounds... she sent in an application for that work program, not just to be a Disney Princess. I forget what it's called... but, if she did sign up for it, she would be placed anywhere they needed her, and might not get her dream of being a Princess... It's a hard competition for those spots, and even harder if you apply for that work program, from what I've heard. You're most likely to be put into a costume like Minnie Mouse, or something else with a head. I think everyone has the right to dream... I just don't know that her dream is going to come true. And I hope she's ready for that, if it doesn't.

[thenightowl]

Going back to topic On IG I saw that Daniell had her wisdom teeth removed... so, I guess we'll be seeing a vlog about all the funny things she said and did when she had them removed. I'm just wondering, is it a typical thing to give everyone laughing gas, when they have their wisdom teeth removed? When I had mine out, I couldn't have it, because of my allergies... so, all I got was the numbing shots... and I was shaking so bad, the nurse had to lay on top of me to get me to sit still, I was so nervous. I didn't feel a thing, I didn't even realize the dentist had even removed them... so, other than for nerves, why give laughing gas? Just wondering if anyone knows?

Also, I wonder when Allie is going to hear back from Disney? From how it sounds... she sent in an application for that work program, not just to be a Disney Princess. I forget what it's called... but, if she did sign up for it, she would be placed anywhere they needed her, and might not get her dream of being a Princess... It's a hard competition for those spots, and even harder if you apply for that work program, from what I've heard. You're most likely to be put into a costume like Minnie Mouse, or something else with a head. I think everyone has the right to dream... I just don't know that her dream is going to come true. And I hope she's ready for that, if it doesn't.

I didn't get laughing gas but I was put to sleep, the oral surgeon had to cut out mine because one was sideways, I wouldn't have wanted to be awake though because I have a fear of dentists.