Phil and Alex: Struggling With Maternity After Laboring For Eternity | Part 10

[HashtagBlessed]

2.5 months old and only getting 21 ounces of milk a day...and that's what she admits to it...it's likely not even that much. I can't imagine why she hasn't gained weight like she should be.... If she doesn't know it's a holter monitor, she must be the worlds dumbest nurse.

Yep, supposedly 21 oz per day, and sounds like she's spitting up quite a bit still, so probably not even getting that. Especially if she's continuing to guesstimate how much she's getting without a scale when she manages to get her to nurse for a few minutes here and there. A 2 month old takes about 24-28 oz in a 24 hour period in order to thrive. That's a normal baby who doesn't have a crazy fast heart rate due to a defect.

I remember obsessively timing each feeding with an app on my phone. Probably excessive, but my baby was small and in the beginning I had no idea how much she was getting through breastfeeding. She never had a weight gain issue, she was always right on track. Eventually I was able to drop that habit of compulsively tracking everything. I can't imagine how Alex lives with herself continuing to see her daughter drop off the charts week after week, and she can't be bothered to properly fortify, keeping the tube in, or buy a scale.

[Dani_465]

I'm really concerned Cassidy will have long term effects from this, if she survives. And I'm worried about Kinsley and Callie too. They're already ignoring Callie's hips, what if something else comes up?

Alex definitely has NPD, but this combined with the crunchy shit is a dangerous combination. I grew up with a crunchy NPD mother. She often denied me medical treatment when I really needed it. Nearly died twice, my poor dad had to fight her to get her to give in and let me go to the hospital. I nearly died from treatable infections because she thought antibiotics were truely evil. One got so bad I am dealing with disability 10 years later. She also forced me to go through painful and expensive alternative therapies that did nothing, and even made things worse occassionally. These things have long-term impacts. Not just physically but psychologically.

The reason my mum never wanted me to have antibiotics, western medical intervention or vaccines was because she thought she knew best (better than all the doctors), and she wouldn't budge. In her mind, giving in and letting me get antibiotics world have symbolised a personal failure to her. She didn't want to look/feel bad for letting me have "toxic" medications, she had this idea that if she could cure me with natural remedies she'd be a saint of a mother. It's a superiority thing.

I see this shit in Alex too, 100%. I'm in therapy now trying to heal from my upbringing. I hope the girls can all access therapy when/if they need it. Even better, I hope Alex can change her ways. Unfortunately, people with NPD rarely change.

What’s sad is every single person I know who denied modern medicine had an early demise. I LOVE my herbal supplements and essential oils but man alive I love modern medicine more!

[spicy_dreams]

I'm really concerned Cassidy will have long term effects from this, if she survives. And I'm worried about Kinsley and Callie too. They're already ignoring Callie's hips, what if something else comes up?

Alex definitely has NPD, but this combined with the crunchy shit is a dangerous combination. I grew up with a crunchy NPD mother. She often denied me medical treatment when I really needed it. Nearly died twice, my poor dad had to fight her to get her to give in and let me go to the hospital. I nearly died from treatable infections because she thought antibiotics were truely evil. One got so bad I am dealing with disability 10 years later. She also forced me to go through painful and expensive alternative therapies that did nothing, and even made things worse occassionally. These things have long-term impacts. Not just physically but psychologically.

The reason my mum never wanted me to have antibiotics, western medical intervention or vaccines was because she thought she knew best (better than all the doctors), and she wouldn't budge. In her mind, giving in and letting me get antibiotics world have symbolised a personal failure to her. She didn't want to look/feel bad for letting me have "toxic" medications, she had this idea that if she could cure me with natural remedies she'd be a saint of a mother. It's a superiority thing.

I see this shit in Alex too, 100%. I'm in therapy now trying to heal from my upbringing. I hope the girls can all access therapy when/if they need it. Even better, I hope Alex can change her ways. Unfortunately, people with NPD rarely change.

What’s sad is every single person I know who denied modern medicine had an early demise. I LOVE my herbal supplements and essential oils but man alive I love modern medicine more!

Oh totally, don't get me wrong there are parts of alternative medicine that I really like. There's a time and a place for it though and you have to know when it's time for western medicine. And it's definitely not ok to just do nothing and wait things out when you're dealing with something serious, like what Alex is doing. Withholding or delaying necessary medical treatment for your sick child is neglectful and abusive. As a parent it's your responsibility to know the limits of "wait and see", and go and get a doctor's opinion. Maybe the first doctor made suggestions that don't sound right, so getting a second opinion is ok. But you gotta do something.

Natural remedies work wonders on certain things. But there's other things that really require immediate attention by western/modern medical doctors.

It's not even like Alex is clueless. She's a NICU nurse ffs. She should know better!!! Either she doesn't know and she was a dangerously incompetent nurse, or she does know and she's just choosing to not get her baby the help she needs.

She better cut this shit out asap, help Cassey, and never do this again. She better get it together before Cassey starts forming memories. I remember begging my mum to take me to the hospital when I was in really really bad shape one night, it was obvious I needed help asap, but she just wanted to wait and see. I couldn't fucking believe it, but I was too young to do anything but rely on her. I wouldn't wish that on anybody, you rely on your parents for this shit and when it goes wrong you just end up believing that you're not worth the trouble, or you don't deserve the most basic help. Once I grew up and saw how my mother was supposed to act in those situations, I really started to resent my mum, which I'm still deeply sad about. So Alex has that to look forward to, unless she makes a change. That goes for all her kids.

[Haulnarse]

I'm really concerned Cassidy will have long term effects from this, if she survives. And I'm worried about Kinsley and Callie too. They're already ignoring Callie's hips, what if something else comes up?

Alex definitely has NPD, but this combined with the crunchy shit is a dangerous combination. I grew up with a crunchy NPD mother. She often denied me medical treatment when I really needed it. Nearly died twice, my poor dad had to fight her to get her to give in and let me go to the hospital. I nearly died from treatable infections because she thought antibiotics were truely evil. One got so bad I am dealing with disability 10 years later. She also forced me to go through painful and expensive alternative therapies that did nothing, and even made things worse occassionally. These things have long-term impacts. Not just physically but psychologically.

The reason my mum never wanted me to have antibiotics, western medical intervention or vaccines was because she thought she knew best (better than all the doctors), and she wouldn't budge. In her mind, giving in and letting me get antibiotics world have symbolised a personal failure to her. She didn't want to look/feel bad for letting me have "toxic" medications, she had this idea that if she could cure me with natural remedies she'd be a saint of a mother. It's a superiority thing.

I see this shit in Alex too, 100%. I'm in therapy now trying to heal from my upbringing. I hope the girls can all access therapy when/if they need it. Even better, I hope Alex can change her ways. Unfortunately, people with NPD rarely change.

What’s sad is every single person I know who denied modern medicine had an early demise. I LOVE my herbal supplements and essential oils but man alive I love modern medicine more!

Oh totally, don't get me wrong there are parts of alternative medicine that I really like. There's a time and a place for it though and you have to know when it's time for western medicine. And it's definitely not ok to just do nothing and wait things out when you're dealing with something serious, like what Alex is doing. Withholding or delaying necessary medical treatment for your sick child is neglectful and abusive. As a parent it's your responsibility to know the limits of "wait and see", and go and get a doctor's opinion. Maybe the first doctor made suggestions that don't sound right, so getting a second opinion is ok. But you gotta do something.

Natural remedies work wonders on certain things. But there's other things that really require immediate attention by western/modern medical doctors.

It's not even like Alex is clueless. She's a NICU nurse ffs. She should know better!!! Either she doesn't know and she was a dangerously incompetent nurse, or she does know and she's just choosing to not get her baby the help she needs.

She better cut this shit out asap, help Cassey, and never do this again. She better get it together before Cassey starts forming memories. I remember begging my mum to take me to the hospital when I was in really really bad shape one night, it was obvious I needed help asap, but she just wanted to wait and see. I couldn't fucking believe it, but I was too young to do anything but rely on her. I wouldn't wish that on anybody, you rely on your parents for this shit and when it goes wrong you just end up believing that you're not worth the trouble, or you don't deserve the most basic help. Once I grew up and saw how my mother was supposed to act in those situations, I really started to resent my mum, which I'm still deeply sad about. So Alex has that to look forward to, unless she makes a change. That goes for all her kids.

The fact of the matter is Cassidy wont get a chance to resent her mother cos she will be dead. If alex doesn’t pull her head out of her arse she is going to kill that baby. Cassidy looks worse now than she did going back into hospital last time.

[DarthMama]

Why won’t they buy a freaking scale?!?!? You can get one for $50 on amazon or I’m sure even less on FB Marketplace. It makes no sense. They could be tracking how much weight she takes after each feed just like so many other parents do. But they don’t. Why?! It makes no sense to me. They are not doing the best that they can.


Sent from my iPhone using Tapatalk

She keeps talking about it. She seems to want one of the viewers to buy her one is the feeling I get. She keeps hinting on "which is the best?" At this point any is the best, because it's better than nothing. Just like she hinted around about the bouncer after unicorn came home and someone bought the damn thing for them. I really don't think they have bought anything for this baby with their own money. I'm sure a lot came from view gifts she had on an amazon registry.

[Elliecat]

[IMG]//uploads.tapatalk-cdn.com/202008 ... 5e4a0a.jpg[/IMG]

This poor child isn’t even 3 months old yet. Why are they adding rice cereal to her feeds? I’m pretty sure the doctor doesn’t know that she hasn’t followed any of their advice yet, because this should be a very last resort in such a young baby. Adding rice cereal to feeds before four months old can increase the risk of food allergies or other complications, such as choking.

Oh wait. I think they are playing “my baby has...” bingo. Ooooo, I think the next thing is CMPA. They’ve not done that one yet. Probably because it would require Alex to eliminate dairy from her diet and that would mean no more trips to the ice cream place with random visitors.


Sent from my iPhone using Tapatalk

[Haulnarse]

Omeprazole/losec is super common for anyone with reflux, i take it daily. Its a second step here for babies with reflux, first step is adding gaviscon powder to bottles to thicken the feed.

Adding rice cereal is absolute stupidity for a child who may have allergies. thats like 20yr old advice, not current now. Good luck with constipation alex. If you are adding rice cereal you need to add way more liquid to her diet (water or milk).


I’m surprised they aren’t just feeding her slower over a longer period of time, with the tube - that thing could be running all day long if it helps. Keeping a small amount of food in her stomach at once.

Alex breastfeeding isnt working, everything should be put through the tube. Having her sitting up or being held upright instead of flat on her back during a fed would help 100%.

[Tiredofspoiledbrats]

Alex is so full of shit with her latest post it actually infuriates me. “She is upright after every feed” BULLSHIT we are constantly seeing that baby lying on the floor getting her feed, and she has flat out admitted that she sleeps all night and she gets the feed while she’s asleep.. ya know laying down flat in her bassinet. Remember she took out her tube while being fed and Alex was asleep? I can’t even handle this woman i am so angry

[PinkMoscato]

I just want to know what would happen if she gave that baby straight formula for a couple of days. No breast milk or breast feeding attempts. Just a gentle stomach formula

[Cali15]

Omeprazole/losec is super common for anyone with reflux, i take it daily. Its a second step here for babies with reflux, first step is adding gaviscon powder to bottles to thicken the feed.

Adding rice cereal is absolute stupidity for a child who may have allergies. thats like 20yr old advice, not current now. Good luck with constipation alex. If you are adding rice cereal you need to add way more liquid to her diet (water or milk).


I’m surprised they aren’t just feeding her slower over a longer period of time, with the tube - that thing could be running all day long if it helps. Keeping a small amount of food in her stomach at once.

Alex breastfeeding isnt working, everything should be put through the tube. Having her sitting up or being held upright instead of flat on her back during a fed would help 100%.

Yeah I’d think the next step would be a slower rate. it means more time hooked up, but should be easier on the stomach and possibly avoid the reflux/vomiting. And while it’s easier to have scheduled feed times and not always be hooked up, continuous feeds 24 hours a day works out just as well, especially for reflux/vomiting so that the patient can get feeds at a much slower rate and not overwhelm a sensitive digestive system

I’m really curious what the result would be if they admitted Cassidy and ran feeds as ordered by the doctor. That would be the true test.


Sent from my iPhone using Tapatalk

[theshamanisright1]

'I hate meds,' she says. She hates the meds that give her baby a chance at life. This is an absolute cluster fuck of a situation

[spicy_dreams]

'I hate meds,' she says. She hates the meds that give her baby a chance at life. This is an absolute cluster fuck of a situation

"I hate meds" is such a fucking stupid thing to say. She's a goddamn NICU nurse!!!??? Meds will be the difference between her baby surviving or not. She should be grateful we live in a time where they can give sick/CHD babies the help they need to survive. If it wasn't for modern medicine, that baby wouldn't even exist. She's an ungrateful, selfish, short sighted, hot headed imbecile.

[IVFwarrior]

'I hate meds,' she says. She hates the meds that give her baby a chance at life. This is an absolute cluster fuck of a situation

"I hate meds" is such a fucking stupid thing to say. She's a goddamn NICU nurse!!!??? Meds will be the difference between her baby surviving or not. She should be grateful we live in a time where they can give sick/CHD babies the help they need to survive. If it wasn't for modern medicine, that baby wouldn't even exist. She's an ungrateful, selfish, short sighted, hot headed imbecile.

What she should have said is that she hates meds that don't directly get her what she wants. Because she seemed to be fine with all the IVF meds because those directly gave her pregnancy, baby showers, and a chance at crunchy childbirth and breastfeeding. And she was ultimately even fine with the meds to take her pain away in childbirth because it enabled her to film a birth video of her pushing.

But meds to stop her daughter vomiting up her golden unicorn breastmilk? This doesn't get Alex any closer to achieving her breastfeeding dream. If anything, she might feel the doctors are personally attacking her breastmilk (and therefore her worth) because meds are needed to try and get Cassidy to keep it down.

[Here_2_talk]

Cassidy gained 11oz in over 3 weeks. That isn’t enough. A third of what she needs to gain overall in a month. Alex hasn’t done everything she could have. She’s left baby being fed on the floor/sofa/overnight unattended and definitely not upright, Luke she states. If she’s busy pumping, then Phil needs to hold her. Funny how when Cassidy is being held whilst fed she doesn’t spew. Baby carrier, no eye contact so Alex could carry on chatting to followers on IG, put make up on, etc. This isn’t a priority for her, if it was, that child would be on a strict regime, fed - burped- cuddled. Repeat.


Sent from my iPhone using Tapatalk

[LucyLucyAppleJuicy]

I was just thinking, surely her teams know this family are on YT/social media, due to the constant cameras. But at the paediatrician there was only a instastory. I wonder if this was purposeful, because it really doesn’t seem like they knew what they were dealing with, by giving that advice.

The more I watch them the more I think that baby should be removed and looked after properly in hospital. There is something very wrong with Alex.

[sondraK]

Delete

[sondraK]

Isn't the rice cereal going to require a bigger tube? But Alex said C didn't do as well w a bigger tube.
Couldn't she just spoon feed the cereal?

[Elliecat]

Isn't the rice cereal going to require a bigger tube? But Alex said C didn't do as well w a bigger tube.
Couldn't she just spoon feed the cereal?

Or just be done with it all and start solids?


Sent from my iPhone using Tapatalk

[Haulnarse]

Isn't the rice cereal going to require a bigger tube? But Alex said C didn't do as well w a bigger tube.
Couldn't she just spoon feed the cereal?

Alex doesn’t do well with a larger tube. She barely let Cassidy have it for five minutes.

I will put money on it that cassidy doesn’t gain enough weight this next weigh in and Alex will be desperate and Cassidy will end up with a mic-key button or gtube instead, she will see it as a sign from g*d and cassidys reflux will be cured - in the name of unicorn hay-zeus.

Shes throwing out all these sad to have medical intervention posts, yet shes clearly loving all of the attention, having something to complain about and be all high and mighty and preachy about it. Finally using her medical training for “good”. Etc etc. Preachy Phil has been rather silent on things the past few days....

[IVFwarrior]

Isn't the rice cereal going to require a bigger tube? But Alex said C didn't do as well w a bigger tube.
Couldn't she just spoon feed the cereal?

Alex doesn’t do well with a larger tube. She barely let Cassidy have it for five minutes.

I will put money on it that cassidy doesn’t gain enough weight this next weigh in and Alex will be desperate and Cassidy will end up with a mic-key button or gtube instead, she will see it as a sign from g*d and cassidys reflux will be cured - in the name of unicorn hay-zeus.

Shes throwing out all these sad to have medical intervention posts, yet shes clearly loving all of the attention, having something to complain about and be all high and mighty and preachy about it. Finally using her medical training for “good”. Etc etc. Preachy Phil has been rather silent on things the past few days....

I think Phil could go either way here. He's always been Alex's biggest enabler and completely besotted with her and everything she says, but they have shown some marriage shakiness in the past few weeks, and he's described some things (e.g. "forgotten how to breastfeed") differently to Alex, which might indicate that his take on it is different to hers. Alex has gone up a few gears on the narcissism. I wonder if Phil's breaking point will be seeing his daughter look like she's fading away. That could be a trigger for him to wake up and see the shit show he married, given how he almost died of the same condition.

No vile outbursts lately either about how they both can't go to the medical appointments. I bet Alex likes it that way - Phil can't be there to hear directly what the doctor's are saying.