BritneyAndSoSoSo: Part 16

[ladymama]

It bothers me that they aren't testing Aria to see if she's a carrier until she plans to have children... so they're telling her as a teenager (13? 15?) and she'll likely feel like she can't get it done until she plans on having children. Then what if she has an unplanned pregnancy?

They should test her now. And explain it when she's a bit older, if she's a carrier. I imagine if a teenager was a carrier they would be extra cautious and much less likely to have a teen pregnancy.

Idk, just seems like a bad idea to wait. Better to test now, in my opinion.

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[lonelysoul]

It's been on my mind when she said she wanted a bigger car for another kid since she mentioned getting an SUV. If they are thinking about it, I wish they would address it and their plan of action. I hope they aren't just going to wing it. If the June vlogs are for the testing, great. I'd support that more than a makeup binge or a shiny new car. But I really wish they would think about getting a house of their own.

[CoyMistress]

It bothers me that they aren't testing Aria to see if she's a carrier until she plans to have children... so they're telling her as a teenager (13? 15?) and she'll likely feel like she can't get it done until she plans on having children. Then what if she has an unplanned pregnancy?

They should test her now. And explain it when she's a bit older, if she's a carrier. I imagine if a teenager was a carrier they would be extra cautious and much less likely to have a teen pregnancy.

Idk, just seems like a bad idea to wait. Better to test now, in my opinion.

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I strongly agree with everything said above... Also, someone in the comments of her last video said she was a carrier and she also had the symptoms and she used a wheel chair full time... And on medical websites that give information about Duchenne it says that according to the researches a small minority of females who have both a working and a nonworking dystrophin gene do show symptoms of DMD. I do not have an extended knowledge of the dystrophy but who knows, maybe it progresses in a different speed with girls. What I know for sure is though if it was my daughter I would definitely have her checked instead of bragging about being ok with the chances of having another baby with Duchenne for the sake of achieving my goal of having 3 kids.

[annaclinchwalsh963]

the large age difference in the age of my kids 19 then 5 meant medical advances when my daughter had her heel pick test col weeks later we got a call saying needed testing for cystic fibrosis gene. I assumed it was her dad ( different to my sons) but the further tests proved I carry the gene also and so does my son they just didn't test for it back then and he is only a carrier never developed symptoms.
Was scary.

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[annaclinchwalsh963]

sorry that was answer to the genetic testing question , but didn't quote sorry

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[literallywhat]

I also looked a few things up about MD after Nolan was diagnosed and it said women who are carriers might be more likely to have cardiomyopathy and that is what caused Caleb from bratayleys death. So I think they should see if Aria is a carrier because then they need to get her tested periodically for that. And Brit needs to get that checked out as well.

[gypsophila]

I could have sworn they said they checked out Aria too. Does anyone remember what video this was in, or month? I don't think they just let it slide, but I could be wrong. I thought she said they checked everyone's hearts too. Aria should be checked if it's possible to check for that at her age. It would be doing her a disservice not to do it. I hope they were smart enough to check it out, but now I'm wondering too.

[Jeniusm]

My hair is this frazzled, thin, frizzy, dyed mess which is mostly wider than it is long and I get people almost daily asking why I don't straighten it or add curls, or get extensions. The answer? Because this is my hair and this is what it looks like. Yes I try to tame it for various events but mostly it looks like bleached candy floss. Brit's hair was nicer before she dyed it and looked healthier but I kind of think shitting on it every other comment is just unnecessary. It's just hair, no one really cares that much about it.

[OhHiImSam]

I could have sworn they said they checked out Aria too. Does anyone remember what video this was in, or month? I don't think they just let it slide, but I could be wrong. I thought she said they checked everyone's hearts too. Aria should be checked if it's possible to check for that at her age. It would be doing her a disservice not to do it. I hope they were smart enough to check it out, but now I'm wondering too.

I don't necessarily see a point in doing it now, but I would not wait until she's 18. They should at least warn her of the possibility when they sit her down for The Talk.... Which should obviously be before she's 18.

[literallywhat]

I could have sworn they said they checked out Aria too. Does anyone remember what video this was in, or month? I don't think they just let it slide, but I could be wrong. I thought she said they checked everyone's hearts too. Aria should be checked if it's possible to check for that at her age. It would be doing her a disservice not to do it. I hope they were smart enough to check it out, but now I'm wondering too.

I don't necessarily see a point in doing it now, but I would not wait until she's 18. They should at least warn her of the possibility when they sit her down for The Talk.... Which should obviously be before she's 18.

I don't think that person was talking about just testing for the gene for when she has kids. If aria is a carrier, she is at risk for heart problems.

I'm not sure if brit said they could their hearts checked out but maybe she did. I hope she did. It can obviously cause a very sudden death.

[CrzyLtlPrttyThng]

If testing for the gene will help rule out other possible health issues, then I would for sure test her now. But if it's only to see if she's a carrier, then what's the big deal with waiting?

And if they want more kids, that's their decision to make. But if you're going to complain about how hectic your life is now and you're just always so so so busy and so so so stressed about everything, maybe it's not the best idea.

[laurasleaf]

A serious hereditary heart condition runs through my family, ive chosen not to get tested, unless I am ever symptomatic it makes no difference to my life - and it in no way discourages me from having children in the future, and if I was positive it wouldnt prevent me either. It does however prevent me from gaining life insurance if i ever test positive as a carrier or if the gene is expressed.
It is not wrong for them to not test aria.
It is a rule of thumb in medicine - only perform an investigation/management/whatever if it will alter outcome, unless Aria ever becomes symptomatic it wont effect her, and if she wishes to have a family, she can seek genetic counselling at that time.

[literallywhat]

A serious hereditary heart condition runs through my family, ive chosen not to get tested, unless I am ever symptomatic it makes no difference to my life - and it in no way discourages me from having children in the future, and if I was positive it wouldnt prevent me either. It does however prevent me from gaining life insurance if i ever test positive as a carrier or if the gene is expressed.
It is not wrong for them to not test aria.
It is a rule of thumb in medicine - only perform an investigation/management/whatever if it will alter outcome, unless Aria ever becomes symptomatic it wont effect her, and if she wishes to have a family, she can seek genetic counselling at that time.

I think the concern with this heart condition is that there isn't always symptoms. Caleb from bratayley was totally fine. They had even tested him in the past and the test was negative at that point. But he died suddenly at like 13 or 14 I think. So if they choose not to test Aria she literally could just pass away one day and there won't be any symptoms. But if they can catch it, she would probably be totally fine because it is highly treatable. I guess in my opinion, this has nothing to do with her having children. It is literally just the fact that she could have a really dangerous heart condition.

[PissedOutDQ]

TRUE! I guess I never thought of it that way. We are home a decent amount during the day but we leave for at least an hour or two, and then I have homework to do when my daughter sleeps so I don't have nearly as much time as she does. I can't imagine sitting at home all day long like that. She should be working toward her bachelor's degree or something with all that time on her hands!

THIS
She has plenty of time to go to an (accredited) college online. That would be a better use of her money than blowing it on stuff. But I don't think she ever actually wants to work. She's pretty content staying at home and letting Ean make the money.

I'm not going to say she should never have more children. It's unfortunate that she carries a gene for MD. But if she does conceive, I hope they do genetic testing or adopt. But I think Britney likes the attention of being pregnant too much. But some people will take the chance.

And whether to get Aria tested or not is complicated. Perhaps it should be her decision. Some people just don't want to know. She may carry a gene, but what is the actual likelihood her child will have it? I think they should tell her when they have "the talk" like another user said. But no need to freak out a small child who is far from childbearing age.

[annaclinchwalsh963]

I haven't watched it I thought I read she had uncrustables in the lunch video and they had recently sponsored other YouTube families. I could be completely wrong though.

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[gypsophila]

I could have sworn they said they checked out Aria too. Does anyone remember what video this was in, or month? I don't think they just let it slide, but I could be wrong. I thought she said they checked everyone's hearts too. Aria should be checked if it's possible to check for that at her age. It would be doing her a disservice not to do it. I hope they were smart enough to check it out, but now I'm wondering too.

I don't necessarily see a point in doing it now, but I would not wait until she's 18. They should at least warn her of the possibility when they sit her down for The Talk.... Which should obviously be before she's 18.

Sorry I was unclear. I meant I hope they checked her for any heart problems, as those are sometimes associated with being a carrier or having MD. It wouldn't be invasive, but since Ean's family also has a known hereditary heart condition, it should be done. I thought they did check, but I can't find it in any videos.

[pirateayy07]

A serious hereditary heart condition runs through my family, ive chosen not to get tested, unless I am ever symptomatic it makes no difference to my life - and it in no way discourages me from having children in the future, and if I was positive it wouldnt prevent me either. It does however prevent me from gaining life insurance if i ever test positive as a carrier or if the gene is expressed.
It is not wrong for them to not test aria.
It is a rule of thumb in medicine - only perform an investigation/management/whatever if it will alter outcome, unless Aria ever becomes symptomatic it wont effect her, and if she wishes to have a family, she can seek genetic counselling at that time.

I kind of understand where you are coming from on your case, but in relation to the last sentence of yours....

As a medical professional, not doing screening (non invasive or otherwise) when there is a known genetic risk factor for certain disease processes is crazy to me.

It make sense for cases where ppl would not want to seek any medical intervention, but if you can make an informed decision ahead of time, all the better imo.

Something as simple as a patient I had the other week, quite young, hadn't been seeking any kind of routine or preventative care even after his father died at 43 from a genetic heart condition.

Well, he was quite insistent on not doing a cardiac cath, but I was badgering him to death about it until he agreed to sign the consent form. When I returned to work the next day, he was in our critical care unit and had open heart surgery 2 days later. Had he'd done blood work much younger, the issue would have been managed by medications.

There are many things in life you can't plan for, but when there are known genetic risks and prophylactic interventions available, I'd take them.

[WompWomp_1738]

I thought Britney did go to uni? Her FB says "studied health administration at University of Phoenix".

[blackroses]

I thought Britney did go to uni? Her FB says "studied health administration at University of Phoenix".

It's an online school it's total BS

[CypKitty]

IMO it is important to test so you know, it doesn't change what you love about your child.