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olemama wrote:Is it Britney or the Duchenne's causing Nolan's delays. I don't know. But the poor kid seems so far behind intellectually and in his speech. And I noticed in B's insta story where Frank is throwing a big ball with Nolan that his calves are enlarging and he has started to walk on his tiptoes. This fucking disease. It is relentless.
I noticed the toe walking too. PSA BRIT if you had your kid wearing his ankle braces, he wouldn’t be toe walking!!
olemama wrote:Is it Britney or the Duchenne's causing Nolan's delays. I don't know. But the poor kid seems so far behind intellectually and in his speech. And I noticed in B's insta story where Frank is throwing a big ball with Nolan that his calves are enlarging and he has started to walk on his tiptoes. This fucking disease. It is relentless.
Exactly!! That got me so mad that he was on the stairs and he threw the ball at him like do they not care that his leg muscles are weakening and he could easily topple over and bust his head on that hard ass floor? He’s not even my kid and that’s the first thing I noticed. But Britney has such a fucking hard on to prove to her 12 year old followers that Frunk is such a wOnDeRfUl sTePdAd like “see he plays with him, see the kedz love him, he loves the kedz...seee!”
They both clearly don’t care his illness and I don’t need to see anything to know that Britney isn’t doing a damn thing to make shit easier for him.
And you can tell she reads here because she deleted that part of the story lol
olemama wrote:Is it Britney or the Duchenne's causing Nolan's delays. I don't know. But the poor kid seems so far behind intellectually and in his speech. And I noticed in B's insta story where Frank is throwing a big ball with Nolan that his calves are enlarging and he has started to walk on his tiptoes. This fucking disease. It is relentless.
I noticed the toe walking too. PSA BRIT if you had your kid wearing his ankle braces, he wouldn’t be toe walking!!
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Yep. I toe walk with my disability if I don’t have a shoe with a good size sole on it. So the flip flops make it even worse. Even if he had a good pair of athletic shoes it would help with that.
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Last edited by chloe6124 on Wed Jun 19, 2019 10:11 am, edited 1 time in total.
My youngest son is pretty much the exact same age as Nolan. We were concerned about his speech and he’s been in an integrated preschool getting speech therapy and occupational therapy for over a year.
He actually just started getting physical therapy, for a minor issue (I’m still not convinced it’s necessary).
Next year he’s going to kindergarten and will continue his therapies and be in a classroom with support. They never even discussed holding him back. I’m in New York where the cut off is December 1, but still it seems that a kindergarten classroom with support would be better than doing preschool for the third time in a row.
Why is Nolan not in PT at least??? I think it has to do with denial. I don’t know if it’s the same in SC, but we don’t have to pay for any services. Britney wants “perfect” children.
I think the third year of preschool is good for him. Most likely it will be more of a kindergarten type class. In Indiana we have a very early cutoff of aug first. So there are a ton of kids who don’t start kindergarten until 6. Hopefully he is getting speech help in preschool.
I noticed the same thing about Harlow too in her new day in the life. She is very quiet to me now she hardly even spoke a word in the whole video. I thought ok maybe it's just that she is growing up and becoming more mature but then I remembered that the poor thing isn't even 3 yet. Also scarlett doesnt seem like a very happy baby. Honestly, she doesnt really smile much at all. I dont think she smiled the whole vlog yeah shes only 4 months but still
melody01010 wrote:I just saw her story with the baby in the jumper and thought I'd mention that they now say those are awful for proper development. It can affect hips because of the way their legs are spread. It's much much better to stuck to tummy time especially with Scarlett being so young still. With MD already a problems for her kids, she really needs to be safer with this kind of stuff.
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...but then she’d have to supervise her child
We all know Britty loves the laziest ways to parent: iPads, recalled rock n plays, letting newborn Harlow nap in her car seat inside the house, etc. etc.
so a jumper is right up her alley! Shove scar scar in there and walk away to patrol social media!
Brief rant but as a child welfare worker I'm really concerned lol
Do we know if Brit/Ean have spoken with Nolan or Aria about Nolan's diagnosis?
He has a terminal diagnosis. Duchenne MD is not the sort of thing that is just going to be miraculously cured with therapy and medication.
His motor-function, among other things, is going to deteriorate over the next couple years - if not months, in small ways - and the longer they take to introduce things such as safety railings, wheel-chair ramps, and assistive-devices, the scarier it will be for Nolan as he gets older. The entire idea of "we're not going to worry about the 'what ifs'" doesn't work when your child has a terminal diagnosis, the "what if's" aren't hypothetical, some are expectations. There are ways to enjoy your child's life and make sure they enjoy theres while still acknowledging the reality.
Going off the assumption that they are not actively letting him know that one day he may not be able to ride a bike anymore: imagine being 9 years old and all of the sudden you're falling all the time, you're constantly feeling off-balance and you get exhausted just walking to the park let alone playing on the playground. All of the sudden you need to use a wheel-chair, you need to wear braces on your legs, and suddenly there's railings and bars and ramps all over your home. That's devestating for ANYONE, let alone a child.
Children who are told early-on about their conditions are much more able to cope as they get older and the symptoms arise because they aren't suddenly thrust from being a "healthy" child to being a "disabled" child. Normalizing things like crutches and getting him into therapy to learn to operate an electric wheelchair NOW is imperative, why wait until it's absolutely necessary if you clearly have money to throw around??? People in the U.S. are working 3 jobs to make half of what this woman blows on cars and couches.
And for fucks sake lady, get an IUD and STOP BREEDING. Oh, your kid wasn't born with MD? Well congrats, they're most likely still a carrier, but let's just let that be your child's problem if they ever decide to try and start a family, right?
olemama wrote:Is it Britney or the Duchenne's causing Nolan's delays. I don't know. But the poor kid seems so far behind intellectually and in his speech. And I noticed in B's insta story where Frank is throwing a big ball with Nolan that his calves are enlarging and he has started to walk on his tiptoes. This fucking disease. It is relentless.
I no longer watch the vlogs or her insta stories but from the sounds of it Nolan's DMD despite it being a unique mutation, is progressing as quickly as normal or even moreso. Whether this is because he's not in preventative therapy or it's just what's happening, Britney can't keep being in denial. She was probably hoping that Nolan's DMD would be less progressive or at least not as fast. But the oposite seems to be happening.
honeybear wrote:Britney said she couldn't hang the jolly jumper from most of the doorways because only a few had "crown moulding"....... I knew what she meant but damn this girl is seriously DUMB. You mean a door frame brit brit?
Seriously tho she really seems like she's missing a few lightbulbs upstairs. She is not very bright and that's me saying it nicely.
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I think it depends on where you live. Where I grew up we called it “door frames”. Once I moved across states I realized they called it “doorways”.
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Doorway, door frame... same thing. Crown molding is definitely not the same thing.
The Ram Fam's son I think began using a wheelchair part time at age 5. Sarah has been bringing Brandon to therapy since the diagnosis at 1 1/2 years old. they are both 25 but there is a day and night difference.
I j looked at her Instagram and look who's following her! HI BRITNEY
I dug on YouTube and found her channel before she had 150 subscribers, there is no way Britney found her on her own. I hope seeing how Sarah talks about Brandon's journey makes Britney shit herself
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webby wrote:The Ram Fam's son I think began using a wheelchair part time at age 5. Sarah has been bringing Brandon to therapy since the diagnosis at 1 1/2 years old. they are both 25 but there is a day and night difference.
I j looked at her Instagram and look who's following her! HI BRITNEY
I dug on YouTube and found her channel before she had 150 subscribers, there is no way Britney found her on her own. I hope seeing how Sarah talks about Brandon's journey makes Britney shit herself
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Britney doesn’t care, she knows exactly what’s gonna happen to Nolan yet she refuses to do anything for him. She thinks someones gonna magically find the cure for DMD and boom he’s gonna be cured. She thinks that he’s gonna be the one in a million that won’t need a feeding tube, ventilator, can still walk, will live to 100.
It’s one thing to have hope for that while still treating the disease like the mom from RamFam but this hoe bag does NOTHING. All she does is sit there and record that damn baby all day long while her kids just exist in the shadows.
webby wrote: ↑Wed Jun 19, 2019 4:54 pm
look at Britney's latest Instagram story. Hallway was inches away from slamming her face into the dog bowl stand, omg
Resting_Bitch_Face wrote: ↑Wed Jun 19, 2019 5:26 am
Imagine a 2 year old receiving a combination of constantly getting scolded, no hugs/kisses, no stimulation, going from being the center of attention to an afterthought, having 3 different homes in her short life, being ripped away from her real dad then a stranger she knew as daddy all up on her then completely ignoring her for the new baby is gonna mess with her little head.
Britney can say her kids are “perfectly happy and not affected” by all the changes they’ve gone through this past year and a half but we all know that’s a crock of shit. I mean Nolan is repeating pre-k for the 3rd year in a row because he’s behind BECAUSE OF HER.
I can already see how happy she’s gonna be once Harlow is in school and it’s just her and her little family.
I feel this way with Aria too - the way she acts is like she's gotten used to not expecting much from Britney or Frank. And poor Harlow kills me. It does make me wonder where the hell Ean is in all of this. He had a job where he could mostly be home nights/ weekends so why doesn't he have them more?! Lots of time with a parent whose sole focus is them would be so good for all three imo.
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